No one expects for their child to have a deletion in his genetic makeup,especially a deletion that doctors don't know much about. This is why we have started "Landon's Love," a developing organization/business to raise money for genetic research in order to help doctors better understand chromosome deletions such as Landon’s, comfort parents as they embrace this journey with their child, and ensure that people with genetic differences have the brightest future possible. Our son might be missing part of a chromosome, but he has captured the hearts of all who have met him. There is nothing better than Landon's love!

31 January 2009

more pics and work on the brochure







so, we still haven't made it to the bank. i hope to do that when i am off with landon on Wednesday. i feel like then, even though i haven't heard back from the UVA woman, we can start selling some stuff. at least if i go to the bank and set up the account the money will be in one safe place and when i hear back from UVA medical center i can just write them a check. during Winter Break i began working on labels, tags, etc and well as a brochure. some components of the brochure have never changed, but other parts of it i must have changed 10 times! it has been so much fun playing with it and manipulating it! here how i figure the next steps should play out:
1. go to the bank--i feel like once i do this we are good to go.

2. send out brochures--this gives info on how to order/buy etc

3. sometime have a Landon's Love Party--i just thought i could have stuff set out for people to buy if they want to...otherwise it will be a great chance to see everyone. THANKS by the way, for your feedback on the party idea.

It would be really nice to have another snow day this coming week to work on Landon's Love stuff, but (as a couple of you reading will agree) I really cannot afford to be away from school anymore at this point given all that is going on!



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