No one expects for their child to have a deletion in his genetic makeup,especially a deletion that doctors don't know much about. This is why we have started "Landon's Love," a developing organization/business to raise money for genetic research in order to help doctors better understand chromosome deletions such as Landon’s, comfort parents as they embrace this journey with their child, and ensure that people with genetic differences have the brightest future possible. Our son might be missing part of a chromosome, but he has captured the hearts of all who have met him. There is nothing better than Landon's love!

24 November 2012

whoosh

L. Has had a tough adjustment to school this year despite his amazing team.

So the good report from the cardiologist last week was a relief to say the least! Everything looked 'perfect'.  She asked us to come back in 5 years just to double check, but that is standard procedure.

As usual, the folks in the pediatric departments at UVA were azing.

L scored this cutie for his bravery.   He named him 'ROCKY'


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