No one expects for their child to have a deletion in his genetic makeup,especially a deletion that doctors don't know much about. This is why we have started "Landon's Love," a developing organization/business to raise money for genetic research in order to help doctors better understand chromosome deletions such as Landon’s, comfort parents as they embrace this journey with their child, and ensure that people with genetic differences have the brightest future possible. Our son might be missing part of a chromosome, but he has captured the hearts of all who have met him. There is nothing better than Landon's love!

26 December 2009

new red dino

in case anyone was worried, new (working) red dinosaur was acquired from target today. we helped Santa out...even better, now that Christmas is over, spike was easier on our wallets. so, for any of you who are in dire need of a 27 inch roaring dinosaur, head on over to target in the clearance section. call us if you need directions once in the store, landon will hook you up. and in case you need the green one too, he'll direct you to toys r us.

25 December 2009

even Santa has a hard time sometimes

so, anyone who has been around landon recently knows the ONLY thing he wanted for Christmas was RED spike the dinosaur from target to go with his GREEN spike the dinosaur from toys r us.

Santa certainly brought red dinosaur, but some snow must have gotten in his little legs because he's not working so well.

i've been about to lose it all morning looking at the disappointment on his face. he's steady looking into the sky thanking Santa, though and thanking us for promising to take him to target first thing in the morning to get a new one. i just hope they have one!

we're so blessed to have a child as wonderful as landon, who, despite how difficult life can be, seems to understand that things aren't always going to work out how we want and we just have to live with it!

my hope is that this will stay with him his entire life and that he will always believe that Christmas is about being together more than anything.

23 December 2009

products for men

one of the suggestions from folks has been to try to come up with products for men in the Landon's Love line. You'd think this would be easy, but being a girl, i tend to flock to the "cute" and girlie.

At a conference regarding new Virginia Math SOLs I was introduced to wordle (www.wordle.net). It is the neatest thing. You can cut and paste any text and wordle will create an image using the text. You can choose your color and play with the design until you get something exactly right. The coolest aspect is that the more often the word is used in the passage, the larger it is in the image.

how does this relate to Landon's Love? In an attempt to figure something out for the manly men out there, i took the Landon's Love "blurb", as i like to call it and put it into wordle. So far, i've made shaun a shirt (just ironed it on) and it looked really cool.

I couldn't figure out how to attach an example, so you'll have to check Wordle out on your own.

www.wordle.net

Yearly Donation

I cannot believe it has been a year since the idea of Landon's Love transpired. It has certainly been an adventure starting Landon's Love, especially while attempting to manage every other aspect of life.

I never knew how much it cost or how much time it takes to start up a business, but here we are, a year later and i'm proud to say that despite all of the expenses, Landon's Love will donate over a thousand dollars to the UVA Fund in Landon's name to go toward genetic research and helping patients and families with genetic differences. In addition to the thousand that the business has donated, we have had generous donations made in Landon's name directly to the UVA Fund.

THANK YOU for all of your support, both morally and through donations. we certainly couldn't have done this without you!

we look forward to a new year, hopefully filled with new ideas and new journeys for Landon's Love.

We are very blessed to have such a wonderful son who has inspired us to help others.

Happy Holidays and may the new year bring you all peace and warmth in your hearts!