No one expects for their child to have a deletion in his genetic makeup,especially a deletion that doctors don't know much about. This is why we have started "Landon's Love," a developing organization/business to raise money for genetic research in order to help doctors better understand chromosome deletions such as Landon’s, comfort parents as they embrace this journey with their child, and ensure that people with genetic differences have the brightest future possible. Our son might be missing part of a chromosome, but he has captured the hearts of all who have met him. There is nothing better than Landon's love!
27 January 2009
heard back from genetics :-)
Dr. Wilson wrote us back and gave us the name of a woman in a different department to contact at UVA! Even though we didn't get an answer, I feel like we are a step closer than we were! If for some reason they close school tomorrow for bad weather and it is safe enough to drive in the afternoon we might try to go to the bank to talk to them about setting up an account, but we'll see if that happens! A 2-hour delay is a gift as well--it was just so nice to be home today with my boys :-)
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