No one expects for their child to have a deletion in his genetic makeup,especially a deletion that doctors don't know much about. This is why we have started "Landon's Love," a developing organization/business to raise money for genetic research in order to help doctors better understand chromosome deletions such as Landon’s, comfort parents as they embrace this journey with their child, and ensure that people with genetic differences have the brightest future possible. Our son might be missing part of a chromosome, but he has captured the hearts of all who have met him. There is nothing better than Landon's love!

04 January 2010

More Genetic Testing

we got the results from the last genetics testing. i can't say i really know what anything means, but i appreciated the call.

the test confirmed landon's deletion at chromosome 4 on the short arm (p). this latest test also identified the interval at which it is deleted. the test also concluded that he is missing 33 known genes, which are located in the region.

this deleted interval with the 33 missing genes is thought to be the cause for landon's delays and difficulties at this point.

i am sure we will find out more and more as each year passes.

for now, we celebrate his progress, and he's given us plenty of things to celebrate!

as much as i struggle with our situation, i absolutely cherish the moments that we have. it's almost as if God has put life on slow motion so that we can observe the changes and the milestones unlike other families.

i'm not sure what the future will hold for any of us, but i guess no one does.

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