No one expects for their child to have a deletion in his genetic makeup,especially a deletion that doctors don't know much about. This is why we have started "Landon's Love," a developing organization/business to raise money for genetic research in order to help doctors better understand chromosome deletions such as Landon’s, comfort parents as they embrace this journey with their child, and ensure that people with genetic differences have the brightest future possible. Our son might be missing part of a chromosome, but he has captured the hearts of all who have met him. There is nothing better than Landon's love!

22 January 2010

be careful what you wish for

shaun and i have been talking about how sad it's been that Landon has fallen asleep practically every night at 5:30 pm for what seems like forever. although we know he needs the rest, it is disappointing for us because the evenings are the only times we see him during the week.

as usual, he fell asleep on the lengthy 5 minute ride home tonight. shaun and i ordered food, tried to clean up some of this ridiculous mess and then settled in to watch a movie. 20 minutes into the movie what do we hear? the pitter patter of (not 8 tiny reindeer) Landon with the biggest grin and his signature snicker...you know, the one he busts out when he's doing something he shouldn't!

so, here we are...shaun is playing a video game to entertain him and my hair is getting the "twist" treatment!

i'm sure this will be far less comical 2 hours from now when he is still awake, but for now we can only enjoy the time...even if it is midnight!

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