No one expects for their child to have a deletion in his genetic makeup,especially a deletion that doctors don't know much about. This is why we have started "Landon's Love," a developing organization/business to raise money for genetic research in order to help doctors better understand chromosome deletions such as Landon’s, comfort parents as they embrace this journey with their child, and ensure that people with genetic differences have the brightest future possible. Our son might be missing part of a chromosome, but he has captured the hearts of all who have met him. There is nothing better than Landon's love!
Showing posts with label therapy. Show all posts
Showing posts with label therapy. Show all posts

23 January 2010

3:30am

We saw 3:30 am this morning before mr. mr. went back to sleep!--just in case any of you were wondering how the night ended :-)

On a brighter note, we had a wonderful day at the farm. Vicky is working on getting Landon warmed up to riding again! We also made boo and shiraz some kitty toys, walked the big boys up the big hill (I led Solvin, which I loved, and Landon held my hand), fed the cow (Ramona) and ducks and separated some brushes according to color.

As far as therapy goes, Edenbrook is one-stop shopping. Not only does Landon get to be around fantastic and majestic animals and the beauty of the land, he gets to spend time with a compassionate and caring family (Velikys--we love you guys!), and gets to work on skills that support speech, occupational therapy and physical therapy without even knowing it!

I went to a meeting this week which spoke to the idea of students and their knowledge of concepts and skills. Today I was reminded of that knowledge is what you can apply to real-life, unfortunately not what I always ask of my students in the classroom. Edenbrook is helping Landon build skills that he can use for the rest of his life. I am already worried about Landon's kindergarten experience, but I need to always keep in the forefront of my mind that so long as Landon is building skills for life, test scores in school shouldn't matter.

While we were at the farm today Vicky shared with me some beautiful soaps that a friend of hers made. She had a great idea, which was to think about a way to make something to go with the soaps--like a sleeve or a holder. I love this idea and cannot wait to explore!

Well, if that post wasn't random enough for you, I don't know what will be...wow! Sorry about that!