No one expects for their child to have a deletion in his genetic makeup,especially a deletion that doctors don't know much about. This is why we have started "Landon's Love," a developing organization/business to raise money for genetic research in order to help doctors better understand chromosome deletions such as Landon’s, comfort parents as they embrace this journey with their child, and ensure that people with genetic differences have the brightest future possible. Our son might be missing part of a chromosome, but he has captured the hearts of all who have met him. There is nothing better than Landon's love!
Showing posts with label symptoms. Show all posts
Showing posts with label symptoms. Show all posts

14 June 2012

Marfan Syndrome

Not an official diagnosis, but our newest ponder after L's 7 year checkup is that he has many characteristics of folks with Marfan Syndrome.  I scored an appointment with genetics in July to hopefully get some questions answered.  At this point, little surprises me, but I still gets freaked out by the L's medical mysteries.  Only time will tell and no matter what, he's my bud!

Marfan Syndrome Information
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